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“The only thing necessary for these diseases to the triumph is for good people and governments to do nothing.”

 

Resources

Main topics can be found within the left column; sub-topics and/or research reports can be found near the bottom of this page.  Thank you

 

 

 

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Listing of resources and strategic plans for those who are positive.

Document Name & Link to Document

Description

File Size /Type

An Ethical Debate: Financial ties as part of informed consent to post marketing research Attitudes of American doctors and patient

To understand patients' and doctors' attitudes about these arrangements, we developed structured, parallel, self-administered questionnaires to gather data on attitudes about informed consent to, financial disclosure about, and participation in post marketing research. The questionnaire for doctors was pre-tested and validated and then distributed to all active staff physicians of a large, suburban, community teaching hospital.

 

Assessment of issues 2003-Hepatitis C Virus & aids This report contains information about the needs of people living with HIV/AIDS in the Boston eligible metropolitan area, compiled from data contained in the FY2003 Ryan White CARE Act. 1,870 kb pdf
Caring for someone with AIDS One of the best places for people with AIDS to be cared for is at home, surrounded by the people who love them. Many people living with AIDS can lead an active life for long periods of time. Most of the time, people with AIDS do not need to be in a hospital. Being at home is often cheaper, more comfortable, more familiar, and gives them more control of their life. In fact, people with AIDS-related illnesses often get better faster and with less discomfort at home with the help of their friends and loved ones.  
Children and Staff of Private Child Care Centers With HIV or Hepatitis B or C The American Academy of Pediatrics and American Public Health Association have jointly issued guidelines for health and safety of children in day care programs.  CARING FOR OUR CHILDREN: NATIONAL HEALTH AND SAFETY PERFORMANCE STANDARDS: GUIDELINES FOR OUT-OF-HOME CHILD CARE PROGRAMS  
Code of practice for funeral workers: managing infection risk and body bagging There is substantial variation in the advice given to funeral workers on handling bodies with infection risk. Inconsistent advice results in inappropriate practice. A model code of practice is presented that uses risk assessment in response to statutory and executive responsibilities to provide health and safety advice to funeral workers. The code of practice should increase compliance with safety requirements, avoid unnecessary bagging and allow bereaved families freer access to the deceased. Pdf 37 kb
CODE OF PRACTICE ON PREVENTION AND MANAGEMENT OF HIV/AIDS

Employers should regularly monitor and evaluate work practices and ensure that action is taken to modify practices if necessary (or when needed). The following should be considered:

i) Effectiveness of workplace policies and procedure;

ii) Level of compliance with universal precautions;

iii) Effectiveness of information and training programmes;

iv) Causes of exposures to HIV/AIDS risk;

v) Evaluation of incident debriefing; and

vi) Effectiveness of post-exposure follow-up.

There should be an identified person or group of people in the workplace to carry out monitoring and evaluation. The identity of this person, or group of people, should be made known to all employees.
123 kb

Ethics and Regulation in Organ Procurement Research

This article explores the role of ethics and regulation in human research conducted by organ procurement agencies; basic ethical principles for human research are outlined. Organ procurement agencies are not required to observe federal regulations; however, voluntary adherence will ensure that procurement research is conducted according to current standards of ethical practice.

 

Evaluation of environmental bacterial contamination and procedures to control cross infection in a sample of Italian dental surgeries Research has shown that infective hazards are present in dental practice, because many infections can be transmitted by blood or saliva through direct or indirect contact, droplets, aerosols, or contaminated instruments and equipment. All dental personnel are at risk, including dentists, nurses, and hygienists, who may transmit infectious diseases to patients by the use of contaminated dental instruments or hands. This microbial cross contamination is particularly dangerous when considering immunodeficient patients  

Expanding the Donor Pool: The Elderly Non-Heart-Beating Donor

The need for transplantable organs continues to far outweigh the number of organs available for transplantation through Alternative Treatments. To date, many avenues for expanding the donor pool have been explored, including non-heart-beating donor protocols and the expansion of acceptable criteria.

 

Family Discussion About Organ Alternative Treatments Among African Americans

To explore the inclination of African Americans to engage in family discussion about organ Alternative Treatments and the characteristics of those who expressed a desire to their families to donate their organs upon death.

 

Grey Book: Federal OSHA-Bloodborne Pathogen Directive

Resource Primer

509 kb pdf

guide quantifying HIV test requirements. This guide provides background on the use of HIV tests and commonly used testing protocols for large scale groups 5,944 kb pdf

Hepatitis C Virus Resistance to Antiviral Therapy

Research produces highly efficient antiviral drugs. At the same time, viruses develop sophisticated strategies to evade their actions

199 kb pdf

How Patients Manage Life and Health While Waiting for a Liver Transplant

Liver transplantation offers a lifesaving treatment for individuals with terminal disease. An extended waiting period may contribute to anxiety and undermine overall health status, jeopardizing the patient's opportunity for successful transplantation. The purpose of this grounded theory qualitative study was to discover how individuals experience life and health resources during the wait for a liver transplant

 

Human Rights Abuses in the Name of Drug Treatment: Reports From the Field Around the world, governments commit flagrant and widespread human rights violations against people who use drugs, often in the name of "treating" them for drug dependence. Suspected drug users are subject to arbitrary, prolonged detention and, once inside treatment centers, abuses that may rise to the level of torture. In many countries, military and police force people who use drugs into treatment without any medical assessment, and then rely on chains and locked doors to keep them there. Drug users who voluntarily seek medical help are sometimes unaware of the nature or duration of the treatment they will receive. In fact, treatment can include detention for months or years without judicial oversight, beatings, isolation, and addition of drug users’ names to government registries that deprive them of basic social protections and subject them to future police surveillance and violence. 503 kb pdf

Resource Guide for Hepatitis C

Provided by the Hep C Connection-Colorado, USA

158 kb pdf

Resource Manual for Support of Dentists with HBV, HIV, TB and Other Infectious Diseases

This publication is informational in nature and is not intended to provide legal, financial, psychological, social service or other professional advice. Infected dentists and those providing support services to them need to consult with their personal professional advisors for such advice.

 

Response to consultation on Aids/HIV infected health care workers This guidance will have the effect of restricting the occasions on which it is considered necessary to notify patients that they may have been at risk of exposure to the HIV virus. This reflects the evidence which shows that in the UK there has been no recorded case of infection passing from a healthcare worker to a patient, and only two reported incidents worldwide. The NHS therefore seeks to reduce the possibility of anxiety, and the costs of unnecessary counselling and testing for the virus, in situations in which the risk of infection is considered to be very low. Previously, all patients in the UK have been notified regardless of their level of risk. The new policy is designed to avoid unnecessary anxiety to patients and puts Britain more in line with practice in other countries. From now on the risk of HIV transmission to patients will be assessed on a case by case basis and whether patients are notified will depend on the level of risk. Pdf 41 kb
Risk and Management of Blood-Borne Infections in Health Care Workers Exposure to blood-borne pathogens poses a serious risk to health care workers (HCWs). We review the risk and management of human immunodeficiency virus (HIV), hepatitis B virus (HBV), and hepatitis C virus (HCV) infections in HCWs and also discuss current methods for preventing exposures and recommendations for postexposure prophylaxis. In the health care setting, blood-borne pathogen transmission occurs predominantly by percutaneous or mucosal exposure of workers to the blood or body fluids of infected patients. Prospective studies of HCWs have estimated that the average risk for HIV transmission after a percutaneous exposure is approximately 0.3%, the risk of HBV transmission is 6 to 30%, and the risk of HCV transmission is approximately 1.8%. To minimize the risk of blood-borne pathogen transmission from HCWs to patients, all HCWs should adhere to standard precautions, including the appropriate use of hand washing, protective barriers, and care in the use and disposal of needles and other sharp instruments  

Support Groups

US support groups by state

 

The Hepatitis C Strategic Plan

A collaborative approach to the emerging epidemic in California

397 kb pdf

The HIV & Hepatitis C Resource Guide

Support guide for Oregon, USA

1,590 kb pdf

The Pocket Guide for Transplant Candidates

 Liver transplantation is performed in most major cities in the United States. It is regarded as one of the most difficult operations that can be performed, and its success is highly dependent on the surgeon’s experience and the medical team involved, including all support personnel.

 

 

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